He Will Be Back!!

He Will Be Back!!

Monday, November 23, 2015

After enjoying a few days at home, sleeping in his bed, sitting by the fire, and getting lots of love from his four-legged friends, Dad is back at Jefferson Hospital. Unfortunately due to an infection, he needed to be back in the hospital where the very capable team of doctors and nurses could care for him. While we were so happy to have him home, we were all very aware that there was a good chance that this could happen and we were happy to make it 6 days at home with no emergency issues. So though it is not ideal (at all), we know this is where Dad has to be for now, and are comforted to know that he is getting the full-time attention that he needs. 

Now we are looking forwards.....on to "Plan B". Dad's next chemo treatment, which he will be starting in just a few minutes, will be a 10-day cycle of a different type of drug; one that is going to attack the leukemia in ways that the other drugs didn't. Depending on how the next week goes, there is also the possibility that Dad could finish this round as an outpatient which would be a very welcome development :) 

Despite the many curveballs being thrown his way, Dad (and all of us) remain unwavering in our spirit, positivity, and belief that he is going to beat this thing. Unfortunately he has been asked to take the long and winding road towards a cure but there is no doubt that Dad is up for the fight. The love and support from friends and family continues to brighten his days, and gives him the strength to push ahead. Please keep the prayers, love, and positive vibes coming!!

xo
Emery

Friday, November 13, 2015

It's a bittersweet day as we pack up room 3114 and get ready to head home this afternoon. After finding out that this second round of chemo wasn't successful, we are now in the process of figuring out our Plan B. In the meantime, Dad is going to head home for a few days (at least) of TLC in the comfort of our home. Yay. While obviously, this is not the position we hoped to be in at "check-out", the idea of being back in his own bed is increasingly exciting for the Big Guy and we are all excited to have him home. That being said, it is a little bit overwhelming to be leaving this safe space that has been Dad's home over the last 2 months. They have taken such good care of him here! Unfortunately with the "bad cells" still beating out the good, Dad remains vulnerable to infection and continues to rely on a comprehensive regimen of drugs around the clock. Luckily, there is a 5'4", superfit and incredibly strong little lady ready to take on her newest role as super-nurse. With help, of course. Luckily - we've spent a lot of time observing over the last number of weeks and we are confident that we can keep our guy healthy and safe at home!

Over the next week we will continue to strategize and plan for the next stage, while we wait for tests to come back which may provide further direction on treatment. We remain confident that we are in the best hands, and more importantly, that all parties want what is best for Dad. We are all committed to getting Dad the BEST care, no matter where that is. It is an impressive brain trust with this group, and we know that they are going to come up with the best plan of attack. Our eyes are still on the prize, and while this latest news has been quite a blow, we have accepted that our route to the end goal of a cure will just have to be a little bit longer. 

One quick PSA as we move into this next stage... While we know everyone is very excited that dad will be back at home (we are too!), all is not back to normal and we will have to continue to be VERY careful in terms of visitors, germs, etc. Even though we will not be in the hospital, we will be doing our best to create a similarly safe / protected space for Dad at home. 

We all, especially my Dad, are very appreciative of all of the support and all of your friendship. It is going to get him through this!! Please keep the notes, prayers, and positive vibes coming - we love it.

Onwards and upwards,

Emery







Friday, November 6, 2015


We're breaking out!!! Well... Not really, but with the doctors permission Jord got to go outside and enjoy a few moments of fresh air and sunshine this week. The unseasonably warm temps in Philadelphia this week (almost 80 degrees!) gave us the perfect opening to "sneak" our guy outside of the hospital walls for the first time in almost two months. As you can see in the pic below... He was a happy man! 
Aside from this exciting action, we have very little news to report. The waiting game continues and probably will for another few weeks. Though he remains quite uncomfortable, Jord's spirits are good and he continues to fight like the champ that he is. The continued outpouring of support is much appreciated. With a big couple of weeks ahead of us, your prayers and positive vibes are more important than ever! Keep it coming - Jord loves hearing from you!




Lots of love from Room #3114