Merry Christmas and Happy New Year!

 

If all goes as planned.....Jordie will be home for Christmas! Jord has been able to continue his treatment as an outpatient and will be finishing this regimen on Christmas Eve. Although this daily routine has been demanding on Jord's energy he has handled it like a champ! Most importantly he has been rewarded each night with the comforts of home- what a gift! 

It will also be a gift to have the entire family under the same roof for the holidays to celebrate all we do have-- including all of you. I want to thank all of you for sending your positive thoughts, strength, prayers, and good wishes over these last months. It has meant so much to me and the kids. The road has been and will be long to recovery but we remain determined! 

Our entire family wishes you all a wonderful holiday season and encourages you to enjoy and celebrate with all those closest to you. May your holidays be bright!

xo,

Deb

Dear Friends,

It's been a while since I've posted because I haven't had much to report.....which is good in some ways- no fevers while at home!- but torturous in other ways-waiting for more information....and always waiting for positive results!

To catch you up on our journey......Jordie needed to stay in the hospital until Dec 2nd. While there( 11/19- 12/2); he was treated for multiple infections; he was operated on to deal with a nasty abscess ; and he was given the first phase, a 10- day course of more chemo, of his Plan B treatment.

Since December 2 Jord has been at home. He has eaten well, has slept better and has overall tried to rest, recuperate and ready himself for the next phase of battle which started today. Jord was re-admitted at Jefferson this afternoon, and is waiting to receive his first dose of the next drug (phase 2 of this Plan B) as we speak.

The hope is he will only be at the hospital for the weekend, so that the team can monitor his response to this new drug. If he manages the drug well and stays infection-free, future doses/treatments may be able to be administered on an outpatient basis... but we are taking things one-step at a time... Whatever is needed to best care for Jord on his way to recovery.

I am soooo thankful for all that ALL of you have been doing for Jord and me.. and Emery, Thomas, Jack, and Lib. All the love, support, and positive energy has been overwhelming and incredibly touching.

Much love,

Deb